Help Connor Beat Sanfilippo

Connor has Sanfilippo Syndrome, a rare, genetic, and fatal neurodegenerative disease likened to a childhood Alzheimer’s. He will lose all the skills he’s gained, stop speaking and walking, suffer seizures and movement disorders, and then die, all in a matter of years. Right before our eyes. But there's hope. A cure is possible. Your support will make it happen in time to save Connor. Please help fund the clinical trial that could save Connor's life. Your donation will help fund the first-ever clinical trial for Connor's specific type of Sanfilippo (Type C). The sooner the funds are raised, the sooner the trial can begin.

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Benefiting Cure Sanfilippo Foundation

$1,760
raised out of $1,000 goal

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Curesfp large
Benefiting Cure Sanfilippo Foundation

$1,760
raised out of $1,000 goal


Donors

$20.00 from Lori S Maguire

"Praying for a cure for Connor."

$100.00 from The Myers Family

"Sending prayers to Connor and his family! We hope you had a great run!"

$20.00 from Christine Genovese

$25.00 from Anonymous

$100.00 from RINA DESAI

$50.00 from Genevieve Black

$100.00 from The Wozny Family

"Praying for a great day and cure!"

$200.00 from Rose Shafik

"Good luck with the run and sending prayers to Connor and his family."

$25.00 from Michael Goetz

$10.00 from Marlita Clarke

$50.00 from Staci Kallish

"Have a great run!"

$15.00 from Marie Gardner

"Good luck!"

$50.00 from Lindsey Doss

$75.00 from Jaimee Gniadek

$25.00 from Tara Aligo

"Prayers for Conner and his family.❤️"

$25.00 from Alexis Popek

"Keep fighting!"

$25.00 from Jamie Janke

$25.00 from Emily Norton

$50.00 from Stephen Stunder

"Best of luck!"

$25.00 from Shine Yoga Center

$25.00 from Raymond F. Anderson III

"Proud to support Priya and Anish on the 5k for Connor. God bless Connor and best wishes always!"

$100.00 from John & Sarita Bhajjan

"Good luck with your run! Hope that the event is a success. Prayers for Connor as his family continues this journey."

$100.00 from Theresa Pietruszka

$100.00 from Anish & Priya Masih

"We are honored to be running for Connor! Can’t wait for his high five at the finish line."

$50.00 from Nicholas Shopa

$25.00 from Jasmine Gaverth

$100.00 from Priscilla Manning

"Praying for you Connor!"

$20.00 from Katie Smith

$25.00 from Laura Battipaglia

"Sending love to Connor and his family!"

$100.00 from Chander Prakash

"Good luck with your run! Prayers for Connor."

$100.00 from Mark Bofinger

"This is important to Jackie and thus important to me."