Help Connor Beat Sanfilippo

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Connor has Sanfilippo Syndrome, a rare, genetic, and fatal neurodegenerative disease likened to a childhood Alzheimer’s. He will lose all the skills he’s gained, stop speaking and walking, suffer seizures and movement disorders, and then die, all in a matter of years. Right before our eyes. But there's hope. A cure is possible. Your support will make it happen in time to save Connor. Please help fund the clinical trial that could save Connor's life. Your donation will help fund the first-ever clinical trial for Connor's specific type of Sanfilippo (Type C). The sooner the funds are raised, the sooner the trial can begin.


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Benefiting Cure Sanfilippo Foundation

$6,220
raised out of $100 goal

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Benefiting Cure Sanfilippo Foundation

$6,220
raised out of $100 goal


Donors

$25.00 from Anonymous

"Supporting you through our mutual friend, Jackie Alfinito!"

$100.00 from The Stock Family

$200.00 from Faggioli Family

$30.00 from Shreeya Pinumalla

$25.00 from Alex Rikess

$100.00 from Jim & Lisa Smith and family

"Praying for Connor and your family!"

$50.00 from Jessica Capece

"Good Luck!!!"

$100.00 from Julie Chang

$50.00 from Dawn Curtis

"Bright Light and The Curtis Family loves our buddy, Connor!"

$250.00 from Patrick Flaherty

"Praying for a very successful event for Conner"

$25.00 from Jill Pirhalla

$10.00 from Jean McMenamin

"Good luck with this event!"

$50.00 from Tammy Hosgood

"Sorry I could not be there to support Connor. I will be running at home on my treadmill in honor of him. I hope to see you soon."

$25.00 from Melissa G DelMonego

$50.00 from Gerri Richter

"Good luck to Connor. We hope he is helped by this trial."

$50.00 from Alexa Chieffo

$200.00 from Scott & Lori Steel

$10.00 from Sandya Srinivas

"Praying for cure and for strength for the family. God sends his special children to the most special families cause he knows they will be well cared."

$25.00 from Maggie Mesa

$100.00 from Noelle Weinrich

$100.00 from Christopher Jones

$100.00 from Alex Ferrari

$25.00 from Mary Obusek

"We are praying for you everyday and hoping a cure does come! God Bless you and your family"

$50.00 from Slusser Family

$100.00 from Martin Anthony

$100.00 from Tracey Daniels & family

$50.00 from Rebecca Ward

"Sorry to miss this special event."

$100.00 from Melissa Cappelli

"All the love and luck in the world to Connor and his family!"

$50.00 from Anonymous

$100.00 from James James

$100.00 from The McNally Family

"Always sending love and prayers!!"

$60.00 from Thomas Riley

"Stay strong, Connor!"

$30.00 from Anonymous

$50.00 from Pat Mitchell

$25.00 from Tanesha Phillips

$100.00 from Jackie Alfinito

"Honored to be your buddy on the high five field! Rooting for you always!"

$50.00 from Rosie and Charlie Schmidt

$100.00 from Anonymous

$1,000.00 from Anonymous

"You got this Connor! We are praying for you!"

$30.00 from Kathryn Dempsey

$50.00 from Anonymous

"Praying for Connor, his family, and for a cure!"

$100.00 from The Burgess Family

"Prayers for a cure!"

$30.00 from Evan auker

$50.00 from Jean E Traver

"Praying for a cure and praying for Connor and his family!"

$30.00 from Andrew Murta

$30.00 from Hemil Kapadia

$10.00 from Corrina Sardella

$30.00 from Cory Yurkovic

$50.00 from Julia Gale

$20.00 from Anonymous

$50.00 from Anonymous

$100.00 from Anonymous

$150.00 from Mark Bofinger

"The goal is only a goal if there’s a way to cure..."

$50.00 from The Henicle Family

"Sending lots of love and strength your way, Connor. You are surrounded by so many people praying, rooting and cheering for you. Keep smiling!"

$10.00 from Anonymous

$25.00 from Amy Holland / Maddy Holland

"Praying for a cure"

$50.00 from Nancy Morrison and Walt Lion

$100.00 from Michaela Tryder

$10.00 from Anonymous

$25.00 from Anonymous

$25.00 from Jacqueline Limongelli

"From a member of the OJR Family to your family... praying for a cure!"

$25.00 from Mary Jane DiChiacchio

"Connor I love you and Keenan with all my heart"

$25.00 from John Avicolli

$300.00 from Bentley Systems Incorporated

"dawn.sander@bentley.com"

$50.00 from Anonymous

"Saying prayers for Connor, his family, and others out there..."

$100.00 from Bill

"For Connor and a cure."

$25.00 from Sharon Savedra

"My thoughts and prayers go out to Connor and family. And that something can be done for such a sweet young boy."

$100.00 from Erica Dugan

"Praying for a cure, all kids should have the opportunity to be adults."

$100.00 from Daniel Miller

$25.00 from Dana Miceli

"Prayers for Connor and family. God Bless."

$100.00 from Elizabeth Lammers

$100.00 from Julie Kotler

"Your whole community is backing you, Connor! Let's fight for a cure!"

$30.00 from Anonymous

$50.00 from Denman's

$25.00 from nancy kibbe

"Good luck! Have Faith."

$50.00 from Mary Jane Moyer

"Praying for a cure and sending love to his family."

$25.00 from Gretchen Pugh

"Thinking of you and praying they find a cure!"

$100.00 from Mark Wagner

$100.00 from Vail Family

"Best of luck Connor, you have an entire community standing behind you"

$100.00 from John and Maureen Menarde